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the struggles of caregivers for dementia patients

Curated by Curiate · the struggles of caregivers for dementia patients

Caregivers for people with dementia provide physical, emotional, or personal care when those people cannot function independently, and family caregivers may be relatives, neighbors, or friends. What emotional toll can this care take, and how can readers understand the pressures caregivers face? The lessons trace that toll through the demands of care, emotional support, social connection, and the strain of coping with changing needs.

2 articles, 1 book · about 16 min of reading and viewing

The reading path

  1. Read
    the struggles of caregivers for dementia patients · Wikipedia · 13 min read

    Family caregivers, also known as informal or unpaid caregivers, are relatives, neighbors or friends who provide support. Providing long-term, unpaid care for someone can have wide-ranging negative effects on carers' physical and mental health and financial situation. Caregivers often help people socialize, keep friendships, do hobbies, and enjoy appropriate physical exercise, and encourage them to leave home for the health benefits of physical and mental activity. Evidence shows social connection and social support help improve mental health and increase the benefits of physical activity.

  2. Read
    Tackling the top stressors for dementia caregivers - Harvard Health · Harvard Health Blog · 3 min read

    Dementia caregiving can bring frustration with unpredictable behavior: one day a loved one understands and recognizes the caregiver, but the next day they don't. Caregivers might feel helpless when they don't know how to communicate with a loved one or cope with dementia-specific behaviors such as sundowning. Caring for a person with dementia is physically and emotionally demanding, and caregivers might experience anger from nonstop caregiving. The combination of stressors puts caregivers at high risk for burnout, high blood pressure, sleep problems, depression, isolation, weight changes, and even premature death.

  3. Book
    Still Alice · Bookshop.org

    Still Alice by Lisa Genova describes Alice's early onset Alzheimer's disease and her struggle to maintain her lifestyle and live in the moment as her sense of self is stripped away.

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